Answer ALS study data is now available

The first set of Answer ALS study data is now available to request at data.answerals.org. Just two months after reaching our target enrollment of 1000 participants, this release includes whole genome sequence data paired with full clinical profiles from the first 100 study participants. As profiles are completed, they will be added until the entire trove of data is available to the global ALS research community. Datasets can be searched based on both clinical and sample features allowing all researchers to rapidly identify the most relevant information for their own studies.

Latest News
 
United for Answers: Leading ALS Organizations Announce ‘Champion Insights’ to Unlock Why Athletes and Military Members Face Higher ALS Risk

State-of-the-art remote-participation research seeks to understand how genetic factors linked to int...

 
Answer ALS Launches AI Drug Development Collaboration with GATC Health, Pennington Biomedical Research Center, and Tulane to Advance ALS Treatment Discovery

NEW ORLEANS, July 22, 2025 — Answer ALS is proud to announce the launch of a groundbreaking collab...

 
Congress Passes Full-Year Continuing Appropriations Act, Delivering a Devastating Blow to ALS Research

Answer ALS is deeply alarmed and disappointed by Congress’ passage of the Full-Year Continuing...